In 2016, a record $390 billion was contributed to charities by individuals, corporations and foundations in the United States, making America the most generous nation in the world. This giving spirit is reflective of Americans across socio-economic lines, with almost one-third of contributions directed to religious organizations and 20% directed to health and human services [...]
While the link between American football and CTE is being investigated, we may not realize that post-mortem studies are also being conducted to find a link between soccer and CTE. It seems that many retired professional soccer players have suffered from dementia and the onset of the disease was unusually young in these players. Studies [...]
How can our society study and regulate the offerings of popular, but unproven, regenerative medicine?
Advances have been made in the field of stem cell therapy, but the expansion of therapies offered, some with, some without, a deep level of research, has grown significantly. Many Americans are traveling to other countries with less rigorous testing requirements to access these therapies. But because the range of the available unproven treatments is [...]
How did physicians use a discovery from a recent #clinicaltrial to save the life of a boy with a dangerous skin condition?
Using a discovery involving the boy’s own stem cells, physicians were able to save the life of a boy with a dangerous genetic skin condition. The patient, who was suffering from junctional epidermolysis bullosa, in which the skin sheds the epidermis, had lost over eighty percent of his top layer of skin. Through the growth [...]
How is the FDA widening the scope of the Reagan Udall Expanded Access Navigator to assist patients with rare or orphan diseases?
Patients with rare diseases face unique challenges. Often, there may be no FDA approved treatments for them, or the patient population with an orphan disease is very small – it may be difficult to find clinical trials developing medicine for their diseases. For this reason, the FDA is expanding the use of the Reagan-Udall Foundation’s [...]
Today is Giving Tuesday - a day to remember that much of the good in the world is undertaken by not-for-profit organizations. WCG Foundation's goals in expanded access, ethical training for medical research professionals, and encouraging greater minority participation in clinical trials, are supported by good people - donors make the difference. Please give today [...]
For heart attack patients unwilling to enroll in traditional rehabilitation programs, what could be a good alternative?
The American Heart Association has recently reported a study in which patients who have suffered a heart attack, and were unwilling or unable to enroll in cardiac rehabilitation programs, had success with tai chi. Those in the group of patients who were attending tai chi practices more often performed more moderate-to-vigorous physical activity over a [...]
The NIH and a consortium of biotechnical companies have created PACT, or the Partnership for Accelerating Cancer Therapies, to encourage the development of new immune based treatments for cancer. In some types of cancer, immunotherapies have created dramatic change in the success of treatment. Who is involved in PACT? And what are its goals? http://bit.ly/2xB85zR
As patients who are receiving treatments via expanded access for diseases are outside of the controlled environment of a clinical trial, their experiences may be considered to be more "real-world." A multi-national chart review has shown that the success of treatments given through expanded access was mirrored in clinical trials, then after approval and mass [...]
Recent research of stem cells in mice has produced a more precise way to deliver chemotherapy to the tumor microenvironment of metastatic cancer. As opposed to targeting cancer cells directly, as other stem cell research has aimed to achieve, this delivery method targets the cells in their home, which could have a greater effect on [...]